Syracuse Memory Walk brings in $123,300 for Alzheimer’s care, support and research

October 2, 2010

This year’s Memory Walk, for which I was honorary chair, attracted nearly 1,000 people to Long Branch Park in Liverpool and raised a record-breaking $123,300. Presented by Loretto, the walk raises money to pay for Alzheimer’s care, support and research.

I appreciate all of the donations my DementiAwareness team collected–$1,025 as of the day of the event. You can continue to make donations through Nov. 1.

We had a crisp, bright fall morning for the walk. And Central New York’s best donuts, supplied by Tim Horton’s. What could have been better?

Well, of course, if there were no need for a Memory Walk to begin with, that would be great. But that’s not the case. Those of us whose lives have been touched (slammed?) by Alzheimer’s disease or another dementia have heard the grim statistics: 5.3 million Americans have Alzheimer’s, and that number will grow considerably as the Baby Boomers start turning 65 next year. (That number does not include other dementias, such as frontotemporal lobe dementia, which has my father in its grip.) Also, that there are no effective treatments or preventive therapies.

The Memory Walk was not a time to dwell on the negatives, though. It was a time for us to come together, gather support, realize we are not alone.

My friend who lost her mother to Alzheimer’s earlier this year was there walking, wearing her mother’s purple fleece jacket. And I saw Tiffany Riihinen and her mother, P.J. Kimmerly, who has the disease; they allowed me to share their story in The Post-Standard a few weeks ago. And as we passed each other on the walk, a man I had not met reached for me, and we hugged. “I’m walking in honor of your dad and my mom,” he said, hurrying off in one direction as I headed in the other. The encounter caught me off guard. For several seconds, I walked in a haze, savoring that fleeting but solid connection with an otherwise stranger, and thinking about my Dad.

He is like so many others’ loved ones, so hobbled by dementia that walking has been replaced with shuffling, and wandering. My Dad’s heart remains strong as his mind fails. He no longer knows me, or his grandkids, or his wife sometimes. We don’t know what memories he has, and we’ve learned we cannot influence that. He has bad days, and days that aren’t so bad, and we’ve learned we cannot influence that much, either. But we can still honor him–and that’s what we did today.

Read what I said before the walk.

Make a donation.


Why walk the Alzheimer’s Association Memory Walk?

October 2, 2010

Here’s what I said before the Memory Walk, held Oct. 2 in Liverpool, NY:

This is not a race to see who can finish first.

Just like the disease of Alzheimer’s and related dementias, some of us will take longer than others to complete this Memory Walk.

We will find parts of the trail that are rough, and some where it is smooth; where the trail twists and turns, and some where it is straight.

We will keep our heads held high.

We will keep placing one foot in front of the other, at our own pace.

Sometimes we may lean on others for help.

We will accept that just when we think we have a nice rhythm going, something is liable to change our plans.

We may cry.

We may laugh.

We may take a rest.

We will learn to cope however we can. This may be all we can do, for now.

But we will do the best we can to keep moving forward.


Welcome to the DementiAwareness blog

August 28, 2010

In case this is your first time visiting, please allow me to show you around. I am Amber Smith, the health & fitness editor for The Post-Standard in Syracuse. I also manage this blog on my own time.

Here are my two youngest children with my father in July. We got to see him during our trip to Texas (my home) this summer. He was diagnosed with frontotemporal dementia more than two years ago and began living in an assisted living facility in October 2008. It’s been an arduous and heart-breaking conclusion to what was, really, a blessed life. My Dad managed amusement parks. He started as a ride operator and worked his way up. Before that, he worked in the oil fields of Texas. And before that, he was a little boy growing up on a farm, squirreling away rodents and reptiles in his underwear drawer.

Anyway, I started this blog as a place to post information about Alzheimer’s disease and related dementias (FTD is just one) along with personal reflections. One of the things I came across was a blogger named Bruce Bane who has the same disease as my father. I have an ever-growing page of definitions. I also have a bunch of online resources on a separate page. You can also find a list of dementia-related blogs, as well as some of the best dementia-related Twitterers.

I try to blog about significant research relating to dementia, and much of it takes place outside of the borders of the United States. (To read my posts, use the drop-down search feature in the right side column of the blog and select “research.”) I also try to call attention to articles about Alzheimer’s and other dementias that appear in major media outlets. You can “friend” DementiAwareness on Facebook, where I promote my posts, or you can sign up for a free email subscription, (again, scroll down in the right side column.) I am also active on Twitter.

Thanks for visiting! And, feel free to leave suggestions or comments below.

Some of my favorite posts:

Amusement parks as a metaphor for life.”

“Contemplations over the loss of a pet.”

“Happy 69th birthday to my Dad.”

“Eighteen months later…”

“Blogger Bruce Bane reminds me of my Dad.”

“Orange prompts pondering over life with dementia.”


Donate for Memory Walk through DementiAwareness, get your loved one on this blog

June 19, 2010

While I’d love to have a huge group of people walking together at Long Branch Park Oct. 2 for the Alzheimer’s Association’s Memory Walk, I know that life sometimes gets in the way!

If you’d like to join us, but can’t, let DementiAwareness walk in honor or memory of your loved one. Make a donation of $50 or more through our team, and we’ll post your loved one’s photo on this blog through the end of October. (See my example at left.)

Now, if this recession is hitting you like it’s hitting me, you may appreciate this reminder: participation in the Memory Walk is free. You can raise awareness regarding Alzheimer’s and other dementias just by showing up–and that costs only your time.

Join the DementiAwareness team.

Make a donation to the Memory Walk on behalf of DementiAwareness.

Learn more about the Memory Walk.


Follow

Get every new post delivered to your Inbox.