Syracuse Memory Walk brings in $123,300 for Alzheimer’s care, support and research

October 2, 2010

This year’s Memory Walk, for which I was honorary chair, attracted nearly 1,000 people to Long Branch Park in Liverpool and raised a record-breaking $123,300. Presented by Loretto, the walk raises money to pay for Alzheimer’s care, support and research.

I appreciate all of the donations my DementiAwareness team collected–$1,025 as of the day of the event. You can continue to make donations through Nov. 1.

We had a crisp, bright fall morning for the walk. And Central New York’s best donuts, supplied by Tim Horton’s. What could have been better?

Well, of course, if there were no need for a Memory Walk to begin with, that would be great. But that’s not the case. Those of us whose lives have been touched (slammed?) by Alzheimer’s disease or another dementia have heard the grim statistics: 5.3 million Americans have Alzheimer’s, and that number will grow considerably as the Baby Boomers start turning 65 next year. (That number does not include other dementias, such as frontotemporal lobe dementia, which has my father in its grip.) Also, that there are no effective treatments or preventive therapies.

The Memory Walk was not a time to dwell on the negatives, though. It was a time for us to come together, gather support, realize we are not alone.

My friend who lost her mother to Alzheimer’s earlier this year was there walking, wearing her mother’s purple fleece jacket. And I saw Tiffany Riihinen and her mother, P.J. Kimmerly, who has the disease; they allowed me to share their story in The Post-Standard a few weeks ago. And as we passed each other on the walk, a man I had not met reached for me, and we hugged. “I’m walking in honor of your dad and my mom,” he said, hurrying off in one direction as I headed in the other. The encounter caught me off guard. For several seconds, I walked in a haze, savoring that fleeting but solid connection with an otherwise stranger, and thinking about my Dad.

He is like so many others’ loved ones, so hobbled by dementia that walking has been replaced with shuffling, and wandering. My Dad’s heart remains strong as his mind fails. He no longer knows me, or his grandkids, or his wife sometimes. We don’t know what memories he has, and we’ve learned we cannot influence that. He has bad days, and days that aren’t so bad, and we’ve learned we cannot influence that much, either. But we can still honor him–and that’s what we did today.

Read what I said before the walk.

Make a donation.


Why walk the Alzheimer’s Association Memory Walk?

October 2, 2010

Here’s what I said before the Memory Walk, held Oct. 2 in Liverpool, NY:

This is not a race to see who can finish first.

Just like the disease of Alzheimer’s and related dementias, some of us will take longer than others to complete this Memory Walk.

We will find parts of the trail that are rough, and some where it is smooth; where the trail twists and turns, and some where it is straight.

We will keep our heads held high.

We will keep placing one foot in front of the other, at our own pace.

Sometimes we may lean on others for help.

We will accept that just when we think we have a nice rhythm going, something is liable to change our plans.

We may cry.

We may laugh.

We may take a rest.

We will learn to cope however we can. This may be all we can do, for now.

But we will do the best we can to keep moving forward.


Please join me at the Syracuse Memory Walk Oct. 2 to raise money for Alzheimer’s

August 29, 2010

The main fundraiser for the Alzheimer’s Association is a series of Memory Walks that take place throughout the country. The one in the Syracuse area happens at 9:30 a.m. Saturday, Oct. 2, at Long Branch Park. I’m honored to be asked to serve as honorary chair.

This 3-mile walk raises money for Alzheimer’s care, support and research right here in Central New York. Please, join my team. It does not cost anything to walk. Of course, walkers are most welcome to make a donation of any amount. (Donate or raise $100, and you earn a 2010 Memory Walk T-shirt.)

Sign up here to join my DementiAwareness team.

You may make also make an online donation–and know that any amount is appreciated.

Donate $5 through Fiverr, and your loved one’s name will appear here, on my blog, in the right hand column under “in honor of…” or “in memory of…”

If you can’t make the Syracuse walk, four other Memory Walks take place in September in the Central New York region, including St. Lawrence, Jefferson-Lewis, Southern Tier and Mohawk Valley.


Make a $250 Memory Walk donation, and your business gets an ad on this blog

June 18, 2010

If your company makes a donation of at least $250 to the Alzheimer’s Association 2010 Memory Walk through my DementiAwareness team, here’s the deal: I’ll give your company an ad on my blog from now to the end of the year — free.

This is the primary fundraiser for the Alzheiemer’s Association, with a series of Memory Walks taking place throughout the country. Ours here in the Syracuse area is a 3-mile walk starting at 9:30 a.m. Saturday, Oct. 2, at Long Branch Park.

I’m honored to be asked to serve as honorary chair.

If you don’t know someone with Alzheiemer’s disease or another dementia, or someone caring for a person who is afflicted, chances are very good that you will in your lifetime. And more than one.

A growing number of people are dealing with a dementia, either as patients or caregivers. More than 5.3 million Americans have Alzheimer’s, which is thought to only represent 60 to 80 percent of all dementias. It’s a disease that affects primarily older people. And with the first of the Baby Boomers turning 65 in 2011, many health experts are saying we are not adequately prepared.

One of my roles as honorary chair of the Memory Walk is to make sure businesses understand the impact this disease has on their workers. It’s profound. Sure, there are signs and symptoms of Alzheimer’s, but often it sneaks up before a family realizes their matriarch or patriarch is so afflicted. One day, a dutiful daughter is a hard-charging career woman, and the next, she’s struggling to take the car keys away. Caregivers are thrust into a role that is, quite simply, overwhelming. The stress is constant and can be debilitating. (Read more of my blog for multiple posts by and about caregiver issues.)

This disease is not just a personal medical issue. It is already making a huge impact on our nation’s health care system and the insurance industry–the cost of the disease is estimated at $20.4 trillion over the next 40 years, by the way. Businesses large and small are impacted not only in increasing health costs, but in worker absenteeism when one must care for a loved one.

Donations to the Alzheimer’s Association go toward care, support and research. Dollars raised at the Syracuse Memory Walk stay right here in Central New York. Remember, if you donate through DementiAwareness, I’ll put your ad on my blog through the end of the year. (The sooner you donate, the longer your ad appears!)

Need more information? Email Amber Smith at amberink@twcny.rr.com with “Memory Walk” in the subject line. Thanks!


Forget-Me-Not Days are May 14 and 15

May 12, 2010


Donate money to the Alzheimer’s Association during “Forget-Me-Not Days” and receive seeds to plant in your own garden. The fund-raiser brought in more than $229,000 in 2009.

This will be the eighth consecutive year that Bankers Life and Casualty Company, a national life and health insurer, has undertaken the fundraiser which puts volunteers in distinctive green aprons, handing out seed packets to raise awareness of the disease.

What a great idea.

These beautiful blueish-purple flowers will come back year after year. They’re a pretty way to “carpet” an area of your garden. Plant them after the last frost, spacing them 4 to 5 inches apart and covering them with 1/8-inch of garden soil. They like the shade the best, must be kept moist, and in northern climates will require mulching over winter.

These are the flowers of remembrance, and of true love.

How to grow forget-me-nots from seed.


What mountaineering and Alzheimer’s have in common

May 1, 2010

Alan Arnette reports on the people attempting to summit Mount Everest, and other mountains. He describes himself as a passionate amateur mountaineer and says Alzheimer’s research is important to him, personally, because the disease took his mother in August 2009.

His climbing blog is soliciting votes (not money, just votes) to help raise money for the Cure Alzheimer’s Fund. Pepsi is running the contest, and the cause that generates the most votes will receive a $250,000 donation. Wouldn’t it be cool to have that money go toward Alzheimer’s research? (Vote directly, here. Watch a 1:44-minute clip about the fund, below.)

I stumbled on Arnette’s blog–and voted, of course–because I’ve been trying to keep track of a Central New York doctor who is climbing Everest and hoping to summit on May 17. Read about Dr. Manoj Vora, here.


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